blobWho are we?
blobNEAD in numbers
blobHow this site works
blobContact us
blobWhat are non-epileptic attacks?
blobAre NEAs common?
blobWhat do NEAs look like?
blobWhat do NEAs feel like?
blobWhat about my other symptoms?
blobHow are NEAs diagnosed?
blobDo I have epilepsy?
blobHow to feel about the diagnosis
blobWhat causes my attacks?
blobEarly life factors?
blobWhy do NEAs start?
blobWhat can trigger further attacks?
blobWhy have the attacks not stopped?
blobHow do these factors act together?
blobHow can stress cause symptoms?
blobWhat if people don't believe me?
blobWhat do I tell people?
blobWhat should people do?
blobWhat can I/my family do to help?
blobHow can I help myself get better?
blobShould I stop doing anything?
blobWhat can my family do?
blobWhat if I get worse?
blobIs there any treatment for NEAs?
blobWhat can help?
blobWhat is psychological treatment?
blobDifferent types of psychotherapy?
blobWho can help?
blobWill I recover?
blobHow can I find out more?
blobCan I drive with NEAD?
blobCan I still claim benefits?
blobAre there any support groups?
blobYour personal stories
blobFurther Support
blobGlossary

How do these factors act together to cause NEAD?

Helen

Explanation: Helen's happy childhood came to a sudden end with the death of her father. She "took over" when her mother was unable to look after her and her younger siblings. Her siblings always looked to her when they needed help. Helen enjoyed being able to help and being seen as a "coper". Helen's marriage was unhappy and marred by violence. She was unable to admit to anyone how badly things were going for her for a long time because she did not feel that she could share with her mother or siblings how unhappy she was. All the upsets of the marriage were brought up in the custody court hearings. Helen badly needed support when she moved in with her mother but was still not able to discuss her desperation with anyone. The seizures started when she was physically and emotionally exhausted. She tried to deal with the seizures by keeping herself busy at all times draining her own energies even more.

Explanation: John never had much self-confidence as a child. His confidence was undermined further when he was bullied at school. When he did make an effort to blend in and go out with his friends he became involved in a car crash. After the car crash, John developed a range of symptoms. He was aware that some of these (such as the difficulty with sleeping and the panic attacks) were related to anxiety after the accident), but he thought that his other symptoms (the memory problems, headaches and seizures) were a consequence of his head injury. The doctors he saw at the time seemed to confirm this when they made a diagnosis of epilepsy. John's confidence was severely shaken by the experience of the accident and the ongoing symptoms. John was particularly worried about having seizures in public because of his previous experience of bullying. The less he went out on his own, the more anxious he seemed to become.

Janet

Janet first developed her attacks after a bad fall down the stairs at home which caused her to break her arm.  On returning home after a short stay in hospital, Janet began to worry about using the stairs in case she fell and hurt herself again. She experienced episodes of panic and trembling at the thought of falling again. In situations where Janet needed to use the stairs, these attacks could develop in to episodes in which she experienced loss of control over her body and limb jerking. Once or twice she even lost control over her bladder. Janet lives alone but her friends and family who have observed an attack explain that Janet seems conscious during the episodes, although she has no memory of what happened after the attacks. Janet ended up spending quite a lot of time on the floor because she was afraid she might fall and hurt herself. She would crawl up and down the stairs and would avoid going to places where she would have to use stairs in public.
Janet was referred to a neurologist who after listening to accounts of the attacks, diagnosed her with NEAD. Janet explained to the neurologist that she spent time in hospital in her childhood. She needed a number of operations on her legs after she had been involved in a serious accident. She has bad memories of being alone in the hospital, of being in severe pain and having to use a wheelchair for a number of months. She recognised that she was fearful of experiencing this again.  

Explanation

Janet’s fall and broken arm reminded her of the traumatic time in her childhood in which she suffered severe pain from operations on her legs. These memories made Janet feel anxious about the possibility of falling again and would cause her to experience episodes of overwhelming panic. She maintained her anxieties by crawling in the home and avoiding the stairs. She had become isolated and depressed because she was not going out and meeting her friends.

Martin

Martin was diagnosed with NEAD at the age of 46. His symptoms had started 5 years previously. Before his first blackout, Martin had been under extreme pressure at work. He had noticed poor concentration and forgetfulness. His first blackout occurred at a business meeting. He noticed blurred vision and struggled to get his words out. He could not recall the names of people around him and felt hot and tired before collapsing. He looked like he was asleep and recovered after one minute. The attack did not involve any shaking. He returned to his hotel room but later had no recollection of doing so. The next day he went to the hospital for a check up, where a doctor noticed he had a droopy eyelid.
Martin was unable to work for 6 months because of persisting fatigue. His attempt to return to work failed because of fatigue, blurred vision and further collapses. Tests for a cause for his fatigue came back negative.
After 20 sessions of psychotherapy, Martin was able to his habit of working extremely hard and at all hours and his tendency to ignore emotional experiences or physical symptoms of stress with his fatigue and collapses. He learned to read the signals from his body and his own emotions better. He was then able to pace himself and recognise his limits. He stopped having blackouts. 

Explanation

Martin’s parents had always been very strict with him and had not been particularly sensitive to his emotional needs. They encouraged constant competition between Martin and his younger brother. Martin therefore grew up with a strong desire to succeed in life and a limited ability to recognise his own emotions or his limits. He avoided emotional challenges through his commitment to work. His reluctance to express his emotions and ask for support meant that he became exhausted and unable to manage in his work to meet his own demands.

It can be very difficult for people with NEAD to understand how a problem that feels and looks so physical can have an emotional cause. If you are interested in reading more information about how stress can cause physical symptoms, click here.

 


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