Paul says ‘If you are worried about seeing a neuropsychologist please don't the help and support I received in giving me an understanding of my illness I cannot put into words.’
Who can help?
- Your neurologist, neurophychiatrist or neuropsychologist will be familiar with NEAD and conditions, which may be mistaken for NEAD (especially epilepsy or fainting). This sort of expert can make the diagnosis of NEAD and explain it to you. If you do not have epilepsy, they will help you to reduce and stop antiepileptic drugs and they will monitor your progress as these changes are made. Some seizure experts work closely with psychologists to whom they may refer you for further treatment. Others refer people with NEAD to psychiatrists for further advice.
- A psychiatrist or liaison psychiatrist can help to explore the issues that may be causing or maintaining your NEAD. Psychiatrists are experts in the treatment of conditions sometimes associated with NEAD such as depression or anxiety. They can offer advice on the treatment of these conditions with medication and can refer you for psychological treatment.
- A clinical psychologist, psychotherapist, counsellor or clinical neuropsychologist can help you to understand what is causing or maintaining your non-epileptic attacks and may be able to offer psychological treatment. See What are the different types of psychotherapy? for more information about what can be offered to you.
- An epilepsy specialist nurse may be able support you with understanding your diagnosis, advise you on how to deal with medication changes and help you to cope better with your attacks. However, epilepsy specialist nurses are not available at all hospitals; or they may be unable to offer services to people with NEAD.
- A hospital social worker or welfare rights officer can give you information about benefits and job schemes that may be available to you.
- Your local Citizens Advice Bureau or DSS can give you advice on benefits, social, financial and housing problems.
- The NEAD trust are a registered charity who aim to provide support to patients with NEAD and their families. You can gain more information about the NEAD trust from their website.
- Epilepsy Society have a forum which has a dedicated section for NEAs and has an option for anonymity. Epilepsy Society also have a confidential helpline on 01494 601 400 which offeres time to talk and emotional support for people with NEAs.
People with non-epileptic attacks can completely recover. For more information about this, click here.